You have been looked at today for your hemophilia. You may have been given a transfusion of clotting factor or other medicines to prevent or treat a bleeding episode.
As you know, joints are a common place for internal bleeding. The joints most often affected are the knees, elbows, ankles, shoulders, or wrists. Bleeding into the joint that happens again and again can cause permanent damage. Learn the symptoms of joint bleeding. Seek prompt medical attention if you think you have joint bleeding.
Follow these guidelines when caring for yourself at home:
Use acetaminophen for mild pain.
Don’t take any product that contains aspirin. Aspirin makes it more likely that you will bleed.
Don’t use ibuprofen or naproxen unless your healthcare provider tells you to do so.
Use prescription pain medicine only as prescribed. Overusing opioid medicines may lead to addiction.
If you have bleeding in a joint, put an ice pack on the area for 20 minutes at a time. Do this every 2 hours. Move that joint as little as possible.
It’s important to keep up your physical strength. This helps protect your joints from injury and internal bleeding.
Choose physical activities based on how severe your hemophilia is:
Solo sports such as swimming, running, and bicycling are OK for people with mild disease.
Team sports like soccer, basketball, or baseball carry more risk for injury. You should avoid these if you have moderate to severe hemophilia.
Heavy contact sports like wrestling, football, and hockey are dangerous for anyone with hemophilia. All should be avoided.
Follow up with your healthcare provider for regular checkups every 6 to 12 months. Everyone with hemophilia disease should get recommended vaccines, especially hepatitis A and B. Tell your healthcare providers and dentists that you have hemophilia before having surgery or a tooth extraction.
Call your healthcare provider right away if any of these occur:
Any serious physical injury
Gum bleeding that won’t stop. This may happen in young children who are teething.
Bleeding from the skin that doesn’t stop after constant direct pressure for 10 minutes
Joint pain or swelling. This is usually the knee, elbow, ankle, shoulder, or wrist.
Muscle pain or swelling. This is usually in the thigh, calf, or forearm.
Head injury, even if you are not knocked out
Severe headache with nausea or vomiting
Seizure or unexpected drowsiness or confusion
Severe backache or paralysis of an arm or leg
Nosebleeds that don’t ease after pinching the nose for 10 minutes
Blood (bright red or dark) in your urine
Blood (black or red) in the stool or vomit
Yellow eyes or skin (jaundice), pain in your right upper abdomen, or severe nausea and loss of appetite (hepatitis)
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