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For Parents: Diabetes Care (Newborn to 2 years)

Diabetes care in young children is not always easy. It might seem like there is a lot for you to remember. But you don’t have to do it alone! You’ll work with your child’s health care provider, nurse, a diabetes educator, and others to develop a diabetes management plan.

You should have a diabetes management plan that tells you what to do overall for your child's diabetes. It should include:

  • A detailed list of medications and instructions, and when to use each

  • How to check blood sugars

  • Symptoms of and how to treat low blood sugar levels

  • Symptoms of and how to treat high blood sugar levels

  • Carbohydrate (carb)  counting

  • Instructions on physical activity and sports

  • What to do if your child is sick with a cold or the flu, for example

  • What to do in an emergency

Also make sure you discuss day care and school with your child's health care provider. 

Checking your child’s blood sugar

Very young children need to have their blood sugar checked often. You may be checking your child’s blood sugar 5 to 6 times a day. The best places to use for blood sugar checks at this age are:

  • Side of fingers tips (not the pad)

  • Side of heel (for very young children who are not yet walking)

Checking for ketones

You sometimes need to check your child's urine for ketones. Ketones are chemicals that are produced when fat, instead of glucose, is burned for energy (ketosis). To check for ketones in very young children, place a cotton ball inside your child’s diaper to absorb urine. Then press the cotton ball to the ketone test strip. If ketones are present, always call your child’s health care provider right away. Some people also use home glucose monitors to check the blood for ketosis. Ask your child's health care provider, nurse, or a diabetes educator for more information.

Managing low blood sugar

It’s very important for young children’s blood sugar never to get too low. Very low blood sugar (hypoglycemia) can affect a child’s developing brain. So, manage your child’s blood sugar as much as possible without letting it get too low. Very young children can’t tell you when they have low blood sugar. Over time, you will learn what is normal for your child. This will help you recognize symptoms of low blood sugar. Pay close attention to how your child is acting. Your child may have low blood sugar if he or she is:

  • Pale

  • Fussy or irritable

  • Sweaty

  • Lethargic (sleepy or drowsy)

  • Staring into space or glassy-eyed

If you suspect your child has low blood sugar, check it right away. If the result is less than 170 mg/dL, or another number your child's health care provider has advised, take action. Treat your child right away with a fast-acting sugar as you were told by the health care provider. If your child is confused, unresponsive, unconscious, or having convulsions (seizures), he or she may have severely low blood sugar. Treat your child right away with glucagon. This is a substance that will raise your child’s blood sugar very quickly. Always have an emergency kit with a shot of glucagon with you. (Your child’s health care provider will teach you how to give a glucagon shot.)

Low blood sugar: When to call the health care provider

Call your child’s health care provider right away or call 911 or go to the hospital emergency department if your child has any of the following should occur. Your child:

  • Is hard to wake or unresponsive

  • Passes out (faints)

  • Has a blood sugar below the “danger number” given to you by the health care provider

  • Needs glucagon

  • Has a seizure

Giving insulin shots

To control blood sugar levels, young children may need about 4 injections (shots) of insulin a day. This includes both slow-acting and fast-acting insulin. The amount of insulin your child needs and how often it’s needed may vary. It depends on when and how often your child is eating. This is especially true if your child is being breastfed. Your child’s health care team will teach you how to give your child shots. In young children, the best places to give shots are:

  • Buttocks

  • Sides of thighs

  • Backs of upper arms

Coping with shots

At first, you may have some concerns about giving shots. If you are nervous, you may want to practice on yourself first. Talk to your child’s health care provider about giving yourself an injection of sterile saline to learn how a shot feels. (If you are afraid of needles, using an injection device may help ease your fear.) How quickly your child adjusts may depend on how comfortable you are giving shots. Treat shots as a normal routine.

Helping your child deal with shots

It’s not unusual for children to cry and be upset when they get shots. But most children adjust very quickly to diabetes care. Shots and blood sugar checks may not be easy for your child to deal with at first. Your child should never feel that blood sugar checks and insulin shots are “punishment.” Here are some tips to help make getting shots easier for your child:

  • Always give your child love and attention before and after shots.

  • Use toys or other types of play to focus your child on something fun.

  • Use “play therapy” to help your child adjust by demonstrating shots on stuffed animals. You can use a syringe without a needle to pretend to give the shots.

  • Talk to your child’s health care team about other ways to help your child deal with insulin shots.

Food and young children

What your child is eating will help determine his or her treatment plan. You will likely start by learning about carbohydrates. Carbohydrates are foods that give your child the energy he or she needs to grow. But they also raise blood sugar higher and faster than other kinds of foods. You will learn about “carb counting.” This is a technique to help you figure out how many carbohydrates your child eats each day. You may learn about carb counting even if your child is still being breastfed.

Physical activity and young children

Like food and insulin, physical activity plays a big role in managing your child’s blood sugar. Being active helps reduce the amount of glucose in your child’s blood. But too much activity can cause your child’s blood sugar to get too low. That’s why it’s important to check your child’s blood sugar often when he or she is active. Talk to your child’s health care provider to learn how to balance your child’s activity with food and insulin.

Diabetes affects the whole family

Caring for a young child with diabetes is a full-time job. You may sometimes feel worn out or overwhelmed. This can lead to burnout. Feeling burned out means that you might have a harder time managing your child’s blood sugar. These tips can help you:

  • All the adults in the household should be involved with diabetes management. Anyone else who takes care of your child, such as a babysitter, must also be prepared to manage your child’s diabetes. A diabetes class can help. So can joining a diabetes support group or talking with a social worker.

  • Keep in mind that it may take some time for your family to adjust to diabetes care. At first, it might seem like your child with diabetes needs more attention than siblings without diabetes. Try to give siblings equal attention.

Making adjustments

Despite your best efforts, your child’s blood sugar numbers will sometimes be too high or too low. But try to remember: The numbers are tools to help you make decisions about your child’s management plan. As your child grows, his or her body changes quickly. This means that perfect blood sugar control is impossible. Adjustments to your child’s management plan are not a sign of failure. They are a normal part of your growing child’s diabetes care.

Resources

For more information about diabetes, visit these websites:

  • American Diabetes Association www.diabetes.org

  • Children with Diabetes www.childrenwithdiabetes.org

  • Juvenile Diabetes Research Foundation www.jdrf.org

  • American Association of Diabetes Educators www.aadenet.org

  • American Association of Clinical Endocrinologists www.aace.com

  • National Diabetes Information Clearinghouse www.diabetes.niddk.nih.gov

 

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